Glossary¶

The portal and the official manuals use Korean administrative terms. This page gives the English used on this site, so that one Korean term keeps one English translation. Claims terms that also appear in the NHIS databases are defined in more detail in the NHIS glossary.

The project¶

한글	English	Notes
케이큐어, K-CURE	K-CURE	Korean Clinical Data Utilization Network for Research Excellence
보건복지부	Ministry of Health and Welfare
한국보건의료정보원	Korea Health Information Service (KHIS)	Operates the portal and the central safe-use center
국립암센터	National Cancer Center
국가암데이터센터	National Cancer Data Center (NCDC)	Designated in September 2021. Releases the Cancer Public Library
암관리법	Cancer Control Act	The statutory basis for the center and the public library
개인정보 보호법	Personal Information Protection Act	The basis for releasing pseudonymized data
가명처리	Pseudonymization	The form in which the extracts are released
안심활용센터	Safe-use center	Closed analysis environment. Also called a safe utilization center
개인정보 이노베이션 존	Personal-information innovation zone	A more secure analysis room at the National Cancer Center, for data with lighter pseudonymization
가상PC, 가상컴퓨터	Virtual desktop	The project's analysis computer, opened at a center or remotely
연구활용계획서	Research-use plan	Required with every application, and to justify restricted variables
보관 중 재사용	Reuse during storage	Reopening a stored extract, up to seven days at a time
반출심사	Export review	Review of results before they leave the center
데이터제공심의위원회	Data-provision review committee	Reviews whether an extract is released
데이터반출심사위원회	Data-export review committee	Reviews export. The portal names this committee in the public-library timetable

The cancer data¶

한글	English	Notes
중앙암등록본부	Korea Central Cancer Registry (KCCR)
국가암발생데이터베이스	Korea National Cancer Incidence Database	The incidence file the public library is built on
암등록	Cancer registration
암 공공 라이브러리	Cancer Public Library	Registry cohort linked to public data
맞춤형	Customized extract	Researcher-specified variables from the full library
표본	Site sample	About 20 percent of one cancer site, with a fixed variable list
표본 병기	Staging sample	About 10 percent of one cancer site, with detailed stage items
병기	Stage
협력병기	Cooperative staging survey	The registry's survey of detailed stage, the source of the staging samples
다중원발암	Multiple primary cancers	A person with two cancers has two rows on `RGST`
대체식별키	Person identifier	`SN_KEY`, reassigned at every extraction
명세서조인키	Claim join key	`MID`, which joins the four claims tables
임상 라이브러리	Clinical library	Standardized hospital records
특화 데이터	Specialized data	Hospital-built datasets, often including images
결합	Linkage, or a combined extract	Person-level link of clinical and public data
전주기	Full cycle	The portal's term for history before diagnosis, at diagnosis, and after
원발부위	Primary site
조직학적 진단	Histology	Morphology
편측성	Laterality
분화도	Grade
요약병기	Summary stage	SEER summary stage: in situ, localized, regional, distant, unknown
국한	Localized
국소진행, 영역	Regional	The profile's English label is regional
원격	Distant
진단일, 초진연월일	Diagnosis date, or date of the first visit	The hospital schema uses the first-visit date. Confirm which date the extract carries

Insurance and claims¶

한글	English	Notes
국민건강보험공단	National Health Insurance Service (NHIS)	Eligibility, premiums, checkups, screening
건강보험심사평가원	Health Insurance Review and Assessment Service (HIRA)	Claims
질병관리청	Korea Disease Control and Prevention Agency (KDCA)	COVID-19 confirmation and vaccination
국가데이터처	National data office	Formerly Statistics Korea (통계청). Date and cause of death
자격	Eligibility
직장가입자	Employee insured
지역가입자	Self-employed insured
의료급여	Medical Aid
보험료분위	Premium decile	Income proxy. 0 is Medical Aid
명세서	Claim
진료내역	Treatment details, or healthcare services
상병	Diagnosis	A billing code, except where it is the registry site
주상병	Primary diagnosis
부상병	Secondary diagnosis
원외처방전	Outpatient prescription	Drugs dispensed outside the institution
건강검진	General health examination
암검진	National cancer screening